Day 65 - Samuel Update

Samuel is still being weaned off of the cpap. Every 3 hours he has 3 hour sprints, so he'll be 3 hours on the cpap and then 3 hours off continually throughout each day depending on how he tolerates it. Sometimes he'll still have desats and heart rate drops but not nearly as much as he used to. He now weighs 4 lbs 14.1 oz and is 17 1/8 inches in length. His poor little head is being shaped by the cpap tubing which they have to wrap around his head to keep the cannula in his nose. Samuel still has a significant heart murmur and nothing has improved in that aspect so they'll be keeping an eye on that. His doctor now says that he thinks he'll be home in a minimum of two weeks and a maximum of 4 but Samuel is going to have to tell us when he wants to go home and when he is ready. Oh yah, Samuel is doing a little better with bottle feeding. He took about 25 mls of milk yesterday (some days he is only able to do 10) but he still isn't so good at the suck/swallow/breathe combination, he gets so tired so fast and I don't blame him. But all in all, he is doing great.

These pictures are from this last sunday. It's so fun to hold him without the cpap. In these next few pictures you can see what the cpap machine does to his head. Poor little guy.


This picture was from Monday. He was so squirmy that night.